It was a long night..Myah was not handling the pain very well..she was kicking and screaming OWWW...She was clearly in pain..not normal behavior for someone on a morphine drip..they increased her morphine drip..but we are trying to decide if they should give her an epidural..
As for Myah she is a very smart girl. When the nurse or doctors come in she closes her eyes. She figures if she closes her eyes she cant see them and if she cant see them then they are not there..
I am very nervous for today's procedure. They will insert a PICC line . PICC stands for: Peripherally Inserted Central venous Catheter. This iv catheter is inserted through the skin near the elbow, into a vein, up the arm, up to the the shoulder. The catheter is a long ,and pushed into the body in the veins until the internal tip of the catheter is in the superior vena cava...need I say any more...she will be awake for this procedure...WHY! WHY!...I am ticked off that they didnt do this in the OR yesterday while she asleep. But they told me that this test has to be done in radiology under scan and fluorecent lights to make sure the iv is inserted into the vena cava...I simply cant watch anymore...
Myah is not able to eat or drink for 10 days...they will give her nutrients through the PICC line. But it doesnt help when she keeps saying "Momma juice"..I keep putting on lip balm on her lips and sneaking her a small ice cube,,,just to wet her tongue...
The hardest thing is seeing her put her arms through the crib spindles and asking to be held..andI have to say no....she then follows by saying "Pwwweese"...
Megan thanks for your words this morning...especially when you told me to think of Dori...you've got to just keep swimming...swimming...swimming...just keep swimming!
Our journey to Adopt our daughter from China Born March 7, 2006
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I can't get on facebook from work but I'll keep checking here. All our love & prayers, The Jones Family
Oh Rina, I know you two have been through so much....it WILL be okay. Paul sells the device they will use for her PICC line and he is in there when they put them in all the time. He says she will feel a burn and a stick, but after that not much else. She might not like it because she's been through so much already, but she shouldn't feel too much pain....especially not compared to the pain she's already had. We're still on our knees for you and Myah!
Chelsea I sent anna and Shane an email this morning..I asked her to forward to you..just didnt want to post everything on blog..my kids read it..
doctors will not give her any sedation for the PICC line..I tried to convince them as did the nurses. Myah is very combative and I dont see the need to torture her and apply restraints to her. She has popped all of her blood vessels in her eyes from screaming and crying. getting a PICC line in a child that is hollering and screaming is a little barbaric for my liking. Give the kid some gas to sedate her at least...
Genie you are a hoot..thanks for following along...xoxoxo
Hank is home sick today...and trevor had a fever yesterday..My household is falling apart...
Just wanted to let you know that I'm checking your blog for updates and feel sooo heartbroken for Myah's pain and all the procedures she's had to endure. She is such a brave angel and so is her mommy.
Yes as Chelsea wrote, the PICC line should not be bad at all. I've seen it done several times (I'm a nurse). Though it is not a thing you want to see done to your child of course.
Well just wanted let you know we're thinking and praying for you guys!
Well, I'm sitting here crying my eyes out and wiping up w/Kleenex. Oh my.
I'm having a moment.
You're having 10,000 moments to the nth degree.
We love you girls.
Vicki and Emily
Still praying!
Rina,
You don't know me but I found your blog via the Gour family. My daughter was adopted in Sept. with the same condition. We went to Cincinnati in Nov. only to find out that her condition was much more complicated and involved than we ever dreamed. She will be having multiple surgeries in June in Cincy.
We have a unbelievable supportive yahoo group of adoptive families with children that were born with IA and associated issues. We would love for you to join us there. Many of the families there have been in your same shoes.
I would love to be a support to you and chat privately at a time that is good for you. I have just sat and read every word of your blog from China until now ...what a beautiful little soul Myah is. She and my Raegan seem like kindred spirits.
My email is creel14@bellsouth.net and my blog will be linked from this comment.
Sending you and Myah many prayers.
Margie
Look Rina. A Mississippi girl is posting here....Margie. I've heard of her but do not know her. I NEED to meet her, though, huh?
I'm sure she's a wealth of information and support. Seriously.
I'm glad to see that she's checked in on your blog.
:) Vicki
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