Wednesday, April 20, 2011

Life-long treatment

Everynight Myah has 2 hour treatment at night around 6:30pm. She will need treatment every night for the rest of her life..Saddens me to know that she knew how to prime an IV line way before she knew how to dress herself. We are second thinking our living quarters and how to make it accomodate Myah. We currently use our bathtub to run her iv and use our cord to our blinds to hold her IV bag. But this is not going to be ideal as she gets older. The 4 kids share a bathroom but with Myah being a girl and having to use the bathroom as her treatment room is really hard.

We need to start thinking outside the box..but having a 2 story home is not ideal for a child that cant make the steps when she gets out of the hospital...My parents would like us to sell and look for a ranch but the market stinks right now...Hoping to come up with a solution soon

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