Moved Mountains..

ok...what a roller coaster ride...and for those of you who know me I HATE ROLLER COASTERS...

We were told that Myah would have to remain in the hospital until Christmas..not sure if you heard my truck driver mouth from where you live but it wasnt pretty...(I did return the next day and apologize to the doctor for everything I said about his mother).but I was mad...I am an hour away from home, havent seen my boys, missing school events, kids have been jumping from house to house and I havent slept in my bed in weeks..but on the reality side..my daughter needs me here...TORN !

So I had to think outside the box..how do I get her the care needed (Iv treatment ect)...I thought of transferring to a hospital closer..but got turned down by insurance...ok Rina think ...think...I then asked for a at home nurse..and they said no...

No isnt something I am used to hearing..I am a go getter and if things make sense for all involved then why not...so I put in a formal appeal and was going to fight it..7 doctors and my insurance comapny on the phone...I was shaking in my boots..ok to tell you the truth I threw up in my mouth...but I walked in and pleaded our case..

Fast forward...they approved us on conditions that I would stay for her 3am iv treatment ..leave the hospital at 4am..arrive home..and have infusion center drop off meds at 8am...the home nurse arrives at 9 for her next iv treatment...

I never packed so fast in my life..I was packing and hoping nobody would walk through the door and change their mind..so I kept a low profile that evening...

Things went as planned..arrived home, got smothered by kisses from the boys and nurse and infusion center kept their end of the bargain too..but then after having the nurse here looking at me in my face all day I was like "this is stupid"..dont you have Christmas shopping to do or something...I showed her thatI can infuse her and do the heparin iv flushes and prime her line..after some convincing the nurse pulled out of the driveway with hopes of catching some rollback sales at Walmart..

So its me and my girl..and I am caring for her in the comfort of our home..until we prepare for the next surgery...

As for Myah..well let it be known ..she is still standing from the storm....