had some play therapy this morning..notice where she placed the bandaid..
right where she has a scar
This was a good idea until I almost got a blood blister
on the tip of my nose..What a mom would do for a smile...
keeping her busy in her crib...not as easy as it seems
we received more e-cards today..we hung them on her bathroom door
this is her A-Team..all the nurses and doctors from every specialty come together in the morning going over their course of therapy..
.............................................................................
I finally got the doctor to agree to give Myah some fentanyl to calm her down during the night. She gets real upset having lines and bandages on her that it throws her into a tailspin..
So alas, we had an order written and she got it every 2 hours...she was real mellow and relaxed..
I was debating going o sleep early or taking a shower..but I knew she would freak if she didnt see me in the room..so I put my greasy head on my pillow and drifted off to sleep...that was until Donna called me at 9pm...thanks for the wake up call..lol
Woke up this morning well rested...I put Myah in the stroller and wheeled her and her Iv tower in the bathroom with me...She watched me shower and blow "fry" my hair...I felt like a new woman...
Then I was thinking to my self..I said "Self, if I feel this good being showered and dressed I bet Myah would too"..So I started to get out her clothes...she picked what she wanted to wear and kept saying "shoooooes" ..I got her all dressed and put on some blush for her...brushed her teeth and hair...
Problem is....We are all dressed and we have no place to go....Ok, Ok, so I didnt think this entirely out...
I took her down the hall and she started to cry..she saw people eating bagels and drinking coffee and she was screaming "Momma Eat"...the smell of breakfast filled the air...and I have no tricks up my sleeve...Myah is not allowed to drink or eat for 10 days...
this is where "bad mommy" comes in...I tip toed into the lounge and grabbed a few pieces of ice..something to just wet her mouth...I slipped it in her mouth..as I lifted my head I got busted by the nurse...and all I could say was "I'll give you 20 bucks if you dont say a word"...we both smiled and I got the lecture...I'm not as slick as I used to be....
I also wanted to thank those of you who have sent ecards via Cincinatti's Children Hospital , emails , comments on my blog and gifts from their gift shop..Some of you I know, some of you I dont but it doesnt matter because in the blogosphere world we are family...
2 comments:
Hi Rina,
Margie sent your blog over to some of us at IA-Adoption. I have a 3 year old adopted last September with IA. I just wanted to tell you how much I appreciate your honesty and openness - the only way our children get what they need is through true parent advocation and you are such an incredible example of that.
Kimberly
Rina,
I received your blog address from a friend. Your journey and advocacy for your daughter and others is an inspiration. Just wanted to let you know how helpful it has been for me to read about your experience, see photos, etc. My daughter (age 5 and home three months from China) and I will be making our trip to Cincy soon for surgery...seeing some of the same doctors you have mentioned.
Myah is a trooper!! God bless her!
We are praying for Myah and your family!
All the best,
Laura
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